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This webinar is part seven of a 10-part seminar series entitled Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities and Disabilities (C6). The series is led by complex care pediatricians from the Hospital for Sick Children (SickKids) and Lurie Children’s Hospital, and representatives from Family Voices.

In this session Sarah Carlson, Kasey Dudley, Dr. James Feinstein, and Luke Orth discuss polypharmacy.

See recaps of other seminars in this series:

The C6 seminar series is funded through a grant from the Lucile Packard Foundation for Children’s Health.

Webinar Recording


Sarah Carlson

Family Consultant, Family Voices

Sarah is a mother to a child with multiple, severe disabilities, and this has permanently changed the lens in which she sees the world. It has also influenced the professional roles she holds. Sarah directs four Institutional Care Facilities, supporting 24 adults with severe disabilities. She also serves as a family consultant for Family Voices of North Dakota and Experienced Parent for Early Intervention/Infant Development services for children and families. Sarah has served as Chair for North Dakota's Interagency Coordinating Councils for multiple terms and holds other leadership roles in her community, state, and on a national level. Sarah navigates the complex world of rural healthcare and services for her own family, and many other families in Western North Dakota.  

Kasey Dudley

Project Director for the Parent as Champions Project, SPAN Advocacy

Kasey is a wife, mother, and caregiver who also has become a trusted advocate and community leader. Kasey is the Project Director for the Parent as Champions Project at SPAN Advocacy and holds a degree in Marketing and Advertising. Kasey is a trained professional in Support Coordination for the New Jersey Division of Developmental Disabilities. She is also a licensed Clinical Massage Therapist who specialized in infant massage and sensory integration for children and adolescents on the Autism Spectrum. Kasey has demonstrated steady leadership in serving families in underserved communities and children with disabilities. Her son was one of the first children to be exclusively breastfed in the NICU as a result of her advocacy.

James Feinstein, MD, MPH

Associate Professor, Department of Pediatrics at the University of Colorado School of Medicine

Dr. James Feinstein practices as an Attending Primary Care Physician in the Children’s Hospital Colorado Special Care Clinic, a medical home for  more than 5,600 children with special healthcare needs, and is a Pediatric Director of a nationally recognized Epidermolysis Bullosa Multidisciplinary Program for children with genetic skin blistering disorders. As a fellowship-trained health services researcher with over 15 years of experience, Dr. Feinstein has led multiple epidemiological and health services research studies focused on children with medical complexity, neurologic impairment, and pediatric polypharmacy. His long-term research goal is to improve medication safety and health outcomes for children with medical complexity, with a focus on implementing and evaluating patient-centric strategies to optimize the management of pediatric polypharmacy.

Luke Orth, PharmD, BCPPS

Assistant Professor, University of Colorado Skaggs School of Pharmacy

Luke Orth is an assistant professor of pediatric pharmacy at the University of Colorado Skaggs School of Pharmacy in Denver, CO. In addition to his pediatric teaching roles within the pharmacy curriculum, he practices as an embedded pharmacist within the Special Care Clinic at Children's Hospital Colorado. Within this role, he works collaboratively with providers and multidisciplinary staff to provide pharmacotherapy recommendations, patient/caregiver education, and other medication-related assistance to patients and their families. His current clinical research focuses on medication therapy management, polypharmacy, and expansion of pharmacy services to children with medical complexity.

Related Grants

Findings from a survey of California-based caregivers that asked them about their experiences receiving peer support for caring for children and youth with special health care needs.

This policy brief by the National Alliance to Advance Adolescent Health looks at what happens when low-income youth and young adults with chronic conditions and disabilities age out of the Title V Program for Children and Youth with Special Health Care Needs and provides policy recommendations.