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What would an ideal system of care for children with special health care needs and their families look like? To address this question, the Lucile Packard Foundation for Children’s Health convened dozens of experts and asked them to take a step back from their roles in the existing health care delivery system and imagine a reconfigured system that would produce optimal health outcomes for children and families.

Using industrial design techniques, participants in these convenings identified weaknesses in the current system and proposed alternatives. They then constructed a model of an enhanced system, which is described in this report.

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This policy brief by the National Alliance to Advance Adolescent Health looks at what happens when low-income youth and young adults with chronic conditions and disabilities age out of the Title V Program for Children and Youth with Special Health Care Needs and provides policy recommendations.

This policy brief by the National Alliance to Advance Adolescent Health investigates the changes that result when low-income youth and young adults with disabilities lose their childhood eligibility status under SSI following the age 18 redetermination process and provides policy recommendations.