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Self-management practices are well established in adult medicine, but are not as common in pediatric care. As the population of children living at home with chronic conditions grows, an increasing number of families are finding themselves responsible for health management, often with little support from their pediatricians. This article provides insights into how pediatric practices can help families assume heightened responsibility for their children’s care at home.

Related Grants

This policy brief by the National Alliance to Advance Adolescent Health looks at what happens when low-income youth and young adults with chronic conditions and disabilities age out of the Title V Program for Children and Youth with Special Health Care Needs and provides policy recommendations.

This fact sheet from the National Health Law Program is designed to inform families about the steps they can take to appeal decisions about their child’s CCS benefits and highlight key resources available to support the process.