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Researchers created the Pediatric Integrated Care Survey, a validated tool that measures a family’s experience with the integration of health care and related services for children and youth with special health care needs. The survey can be used in quality improvement efforts to measure family-reported experience of pediatric care integration.

Learn more about the development of the survey and access the tool, free of charge.

Related Grants

This policy brief by the National Alliance to Advance Adolescent Health looks at what happens when low-income youth and young adults with chronic conditions and disabilities age out of the Title V Program for Children and Youth with Special Health Care Needs and provides policy recommendations.

This fact sheet from the National Health Law Program is designed to inform families about the steps they can take to appeal decisions about their child’s CCS benefits and highlight key resources available to support the process.