Skip to content
See all Grants Awarded

A National Study of Patient and Family Advisory Councils in U.S. Children’s Hospitals

Organization: Institute for Patient- and Family-Centered Care

Primary Contact: Pam Dardess

Grant Amount: $249,848 for 18 months

Date Awarded:

Date Completed:

Purpose

Patient- and Family-Centered Care is an accepted quality standard for adult and pediatric care, but its principles have not been widely adopted as drivers of health care systems improvement. To address this, some hospitals and health plans have developed Patient and Family Advisory Councils (PFAC). This grant will support work to understand current PFAC practices in U.S. children’s hospitals, define the characteristics of high-performing councils, and develop and distribute policy and practice recommendations nationwide.

Related Resources

A national study explored the prevalence and characteristics of Patient and Family Advisory Councils (PFACs) in children’s hospitals. This report highlights ten key learnings from the study, and provides practical guidance about strengthening partnerships with families and patients.

A team of researchers led by the Institute for Patient- and Family-Centered Care investigated the effects of the COVID-19 pandemic on Patient and Family Advisory Councils (PFACs) including how PFACS adapted operations and the intersection with issues related to PFAC diversity, equity, and inclusion.