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Creating Parent Mentor/Self-Management Training Center for Pediatric Health Settings

Organization: Lucile Packard Children’s Hospital Stanford

Primary Contact: Karen Wayman

Grant Amount: $197,026 for 24 months

Date Awarded:

Purpose

Parents of children with chronic / complex medical conditions feel overwhelmed by their circumstances and in addition to the need for emotional support may require help with navigating their hospital stay, discharge process, home care, and the complex health care system in general. Often speaking to other parents is the most valuable resource. Lucile Packard Children’s Hospital Stanford will expand on a previous Foundation grant by establishing a replicable parent mentor program that is adaptable to diverse health care settings. Parent mentors are veteran parents of children with chronic / complex conditions who provide support and navigational strategies to parents of newly-diagnosed children. The program will be developed and tested within a learning collaborative of hospitals nationwide. Funding also will allow for measurement of the impact of a health care team-based parent mentor program, and for national dissemination of the results.

Resources From This Grant

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Five Top Tips for Engaging Families in Advisory Roles: Advice from a Family Leader

Fact Sheets

How do organizations and agencies serving children with special health care needs recruit family members to serve on an advisory committee? How do they encourage commitment to their role? How do they maintain engagement with them? This fact sheet provides recommendations for meaningfully engaging a group of family advisors.

Other Grants to the Same Organization

Children’s Regional Integrated Service System (CRISS) Enhanced Care Management and CCS Children and Youth

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Creation of a Parent Mentor Program to Meet the Health Equity Needs of Children and Families from Diverse Backgrounds

The current health care system perpetuates inequities for many diverse children and families. With this grant, Lucile Packard Children’s Hospital Stanford will create a Diversity,...

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Children’s Regional Integrated Service System (CRISS) Expansion Activities

To monitor transition of children with special health care needs into managed care plans in California, share best practices among CCS agencies and health plans,...

Promoting Family-Centered Care in Children's Hospitals in California

To increase the capacity of child-serving hospitals in California to provide family-centered care; and to begin the formation of a formal family-centered care network among...

Building a Statewide Organization of CCS Medical Consultants

To establish the organizational structure and an agenda of common goals for a statewide organization of physicians working for county CCS programs.

Creating a State-Wide Learning Collaborative to Promote Parent Mentor Programs

To facilitate recruitment, screening, training and accountability of parent mentor programs in 10 child health institutions in California and test the efficacy of using parent...

Creating a Statewide Medical Advisory Committee for the California Children’s Services Program

To identify and implement approaches to improve the effectiveness, efficiency and quality of the CCS program.