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National Care Coordination Standards for Children and Youth with Special Health Care Needs

Organization: National Academy for State Health Policy

Primary Contact: Karen VanLandeghem

Grant Amount: $286,759 for 18 months

Date Awarded:

Purpose

Currently there are no widely accepted national care coordination standards for children with complex conditions. A grant to the National Academy for State Health Policy will launch a process to develop such standards, beginning with a literature review, key informant interviews, and convening of a National Work Group to generate and refine standards.

Outcome

An in-depth, data driven process was undertaken to develop National Care Coordination Standards for children with complex medical conditions. The Care Coordination Standards were released in October of 2020 with more than 7,000 downloads of the materials in the first month of release. An accompanying blog, national webinar, and conference session were produced to disseminate the Care Coordination Standards. A next phase of work includes the writing of a journal article on the Standards, as well as the development of implementation tools that cover key issues, including quality measurement and financing.

Resources From This Grant

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National Care Coordination Standards for Children and Youth with Special Health Care Needs

Research & Reports

The National Care Coordination Standards for Children and Youth with Special Health Care Needs (CYSHCN) outline the core, system-level components of high-quality care coordination for CYSHCN. These standards are designed to help state officials and other stakeholders develop and strengthen high-quality care coordination for children with the goal of identifying and assessing the need for care coordination, engaging families in the care coordination process, building a strong and supportive care coordination workforce, and developing team-based communication processes to better serve children and families.

Aligning Quality Measures with the National Care Coordination Standards for Children and Youth with Special Health Care Needs (CYSHCN)

Issue Briefs

This brief describes key considerations and challenges in care coordination quality measurement and identifies sample metrics that could be leveraged to evaluate the quality of care coordination systems.

Medicaid Financing of Care Coordination Services for Children and Youth with Special Health Care Needs (CYSHCN)

Issue Briefs

There are a variety of approaches that states can use to finance care coordination services for CYSHCN through Medicaid. Financing of care coordination is critical to the quality and sustainability of these services. This brief highlights key components and themes across five states’ approaches to financing care coordination.

Other Grants to the Same Organization

Supporting State Innovations for Equitable Systems of Care for CYSHCN

Many states are just beginning the work of creating equitable systems of care for CYSHCN, often in challenging political climates. In this grant, NASHP will host roundtable events and a national summit to foster cross-state sharing of successful strategies and provide states with support for adapting and implementing strategies. 

Supporting States to Improve Equitable Systems of Care for Children and Youth with Special Health Care Needs

Many states are eager to address health care inequities in their programs serving CYSHCN. To promote this work the foundation has over the past decade...

Advancing National Standards for Children and Youth with Special Health Care Needs

In spite of widespread recognition of the importance and benefits of care coordination, many states report challenges around implementing care coordination that fully and effectively...

National Standards for Improving Quality Systems of Care for Children and Youth with Special Health Care Needs, Phase V

In the past, the health care needs of children with chronic and complex conditions have been met variously in terms of access and quality, and...

National Consensus Framework for Improving Quality Systems of Care for Children with Special Health Care Needs, Phase IV

To assist states in using existing data and quality measures that are aligned with the national standards to improve systems of care. See...

Improving Systems of Care for Children with Medical Complexity through Medicaid Quality Measurement Initiatives

To identify leading Medicaid quality incentive strategies and models, identify gaps in quality measurement and approaches, and outline strategies and recommendations to strengthen quality improvement...

How State Medicaid Managed Care Programs Are Addressing the Unique Needs of Children with Chronic and Complex Health Conditions

Several states already have transferred children with special health care needs into Medicaid managed care systems. NASHP researchers will identify best practices and commonly encountered...

Identifying and Assessing CSHCN: Lessons for States Transitioning to Medicaid Managed Care

To describe the federal requirements of states and managed care organization to identify and service individuals with additional health care needs.

Strengthening Medicaid and CHIP Programs to Serve CSHCN

To disseminate the Foundation’s national consensus standards for systems of care for CSHCN to state leaders of Medicaid and Child Health Insurance Programs for children,...