Skip to content
See all Grants Awarded

Perspectives of Spanish-speaking Caregivers on Patient Portal Use for Children with Chronic Conditions: Perceived Benefits, Facilitators, Barriers, and Strategies to Improve Usability

Organization: Stanford University School of Medicine

Primary Contact: Gabriel Tse

Grant Amount: $24,665 for 12 months

Date Awarded:

Purpose

Patient portals allow caregivers to access their child’s medical records and manage their child’s health, yet patients and caregivers who speak a language other than English (LOE) have low portal enrollment and usage rates compared to those who are fluent in English. These disparities may further worsen health inequities. This qualitative study used focus groups with Spanish-speaking, LOE caregivers, including caregivers of children with chronic conditions, to explore perceptions of, barriers, and facilitators to using patient portals. The study identified strategies to improve patient portal use among Spanish-speaking caregivers.   

Resources From This Grant

See All Resources

Perspectives of Spanish-speaking Caregivers on Pediatric Patient Portal Use

Journal Articles

This study, published in Applied Clinical Informatics, looked at how Spanish-speaking caregivers use patient portals and identified facilitators and barriers, particularly for caregivers of children with chronic conditions. The authors highlight the need for health systems to provide language concordance within patient portals and consider innovative solutions to advance equitable access to health care.

Evaluating Human-in-the-loop Strategies for Artificial Intelligence-enabled Translation of Patient Discharge Instructions: a Multidisciplinary Analysis

Journal Articles

Patients who use languages other than English in the U.S. have worse clinical and patient-centered outcomes, and a key driver of these inequities is barriers to high-quality translation services. An article published in npj Digital Medicine described the findings of a study that compared the quality of free-text hospital discharge instruction translations produced by ChatGPT-4o (Artificial Intelligence (AI)-generated) and human-in-the-loop (AI-generated with human oversight) relative to professional translations across six languages.

Other Grants to the Same Organization

Optimizing Medical Device Education for Spanish-Speaking Caregivers of Children with Medical Complexity

Children with complex medical conditions often require medical devices, such as feeding or breathing tubes. Operating these devices correctly can mean the difference between life...

California Perinatal Quality Care Collaborative (CPQCC) Building A Statewide Family Advisory Council for Neonatal Intensive Care Units

Family Advisory Council (FACs) work with neonatal intensive care units (NICUs) and High Risk Infant Follow-up clinics to facilitate family participation in research, quality improvement...

Community-level COVID Relief: Addressing Emergent Needs and Growing Economic Inequities for Low-income Lucile Packard Children’s Hospital Patients and Families in Outpatient and Community Settings

As children and families in local communities face the economic repercussions of COVID-19, the need for basic necessities is increasing exponentially. Those most directly affected...

Application of Theories of Change in Managing Children with Chronic Health Problems in Pediatric Care and Practice

To identify evidence-based behavioral interventions that can be used in pediatric practice to improve self-management by CSHCN and their families.