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The health care delivery system in California is challenging for families of children with special health care needs. The Lucile Packard Foundation for Children’s Health sponsored a survey to identify key issues that the Foundation should address, notably care coordination, family-centered care and finance reform. Survey respondents also ranked specific activities to undertake, including dissemination of best practice information and sponsorship of regional meetings to tackle local problems. 

The California Advocacy Network for Children with Special Health Care Needs was a Foundation sponsored group with the goal of improving programs and policies that could better support families.


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Drawn from a scan of all 50 U.S. states, this brief published by the National Academy for State Health Policy highlights strategies designed to address inequities in accessing pediatric specialty care and support equitable systems of care for CYSHCN.

A new article in the Journal of Pediatric Health Care from the Institute for Patient- and Family-Centered Care and Cincinnati Children's Hospital Medical Center discusses best practices for supporting diverse membership in children's hospital patient and family advisory councils and advancing the involvement of patient and family advisors in hospital-wide diversity, equity, and inclusion projects and initiatives.