A National Report: Youth and Young Adults with Disabilities Aging Out of Medicaid, CHIP, SSI, and Title V Programs – Barriers, Inequities, and Recommendations

The transition into adulthood leaves low-income youth with disabilities at risk of losing health insurance coverage, income supports, and continuity of care. Through a two-year effort, the National Alliance to Advance Adolescent Health studied the experiences of youth and young adults with disabilities as they age out of Medicaid, the Children’s Health Insurance Program (CHIP), the Supplemental Security Income (SSI) program, and Title V Programs for Children and Youth with Special Health Care Needs (CYSHCN).

This national report, created with guidance from a National Advisory Committee, shares recommendations to address gaps and disparities for each of the public programs studied. The authors call on Congress, federal and state agencies, community-based organizations, and other stakeholders to bring attention to the report’s recommendations for ensuring continuous coverage, income stability, and care for youth and young adults with disabilities aging out of public programs.

See more resources from this project:

Policy Briefs: Recommendations to Assist Youth and Young Adults with Disabilities Aging Out of:

• Medicaid & CHIP
• SSI
• Title V

A Five-State Case Study: Black Youth and Young Adults with Disabilities Aging Out of Medicaid, CHIP, SSI, and Title V Programs