Cara Coleman is a nationally recognized family partner, speaker, medical educator, attorney, writer, and advocate for children with disabilities and medical complexity and their families….
The Lucile Packard Foundation for Children’s Health announces the latest grants awarded through its grantmaking and advocacy program, which focuses on transforming health care systems…
The Future of Care for Children with Medical Complexity (CMC) Virtual Cafe Series is a family-partnered, inter-disciplinary series of presentations by nationally recognized experts in…
The Lucile Packard Foundation for Children’s Health announces the latest grants awarded through its grantmaking and advocacy program, which focuses on transforming health care systems…
Children and youth with special health care needs (CYSHCN) often require care by multiple pediatric subspecialists. Due to a shortage of these physicians, families can…
The Lucile Packard Foundation for Children’s Health is thrilled to announce the newest cohort of researchers and organizations receiving grants through its Program for Children…
Now a year into the process, the COVID-19 Public Health Emergency (PHE) Unwinding, through which many policies put in place during the pandemic ended or…
Meet Stephen and Edward from Alameda County, CA. Stephen and Edward live with Hunter syndrome. There are 200-300 children, virtually all boys, with Hunter syndrome…
Meet Derek from Shingletown, CA. Derek lives with spina bifida, hydrocephalus, a neurogenic bowel and bladder, and bi-lateral clubbed feet. Wendy Longwell and her family…
Meet Savitri from Dunlap, CA. Savitri lives with cerebral palsy, developmental delays, seizures, and spastic quadriplegia. At 6:15 a.m., Beverly Baker starts getting her daughter,…
