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Building Capacity for Diversity, Equity, and Inclusion in Children’s Hospital Patient Family Advisory Councils

Organization: Institute for Patient- and Family-Centered Care

Primary Contact: Pam Dardess

Grant Amount: $220,452 for 18 months

Date Awarded:

Purpose

Patient Family Advisory Councils (PFACs) play an important role in children’s hospitals. These grant funds will be used to identify promising practices that can be used to promote diversity, equity, and inclusion (DEI) in these councils. The researchers will fill a gap in the field by developing information that can help hospitals recognize and understand critical issues and important actions needed for increasing PFAC diversity and for partnering with Patient and Family Advisors (PFAs) in their DEI initiatives. The project team will disseminate the results of an environmental scan and prepare a manuscript for publication in a peer-reviewed journal with the aim of reaching hospital leadership, individuals working in DEI within children’s hospitals, and PFAC leaders.

Resources From This Grant

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Strengthening the Diversity and Role of Patient and Family Advisory Councils: Opportunities for Action

Research & Reports

A national study identified best practices within children's hospitals for strengthening the representativeness of Patient and Family Advisory Councils (PFACs) and for partnering with patient and family advisors on Diversity Equity and Inclusion (DEI) initiatives. This resource highlights six key areas and provides examples from the field to help hospitals improve DEI in PFACs. 

Diversity, Equity, and Inclusion in Patient and Family Advisory Councils: Advancing Best Practice in Children's Hospitals

Journal Articles

A new article in the Journal of Pediatric Health Care from the Institute for Patient- and Family-Centered Care and Cincinnati Children's Hospital Medical Center discusses best practices for supporting diverse membership in children's hospital patient and family advisory councils and advancing the involvement of patient and family advisors in hospital-wide diversity, equity, and inclusion projects and initiatives.

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Advancing DEI in Children’s Hospital Patient and Family Advisory Councils (PFACs): Resources and Learning Community

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As hospitals and other pediatric programs respond and adapt to new and challenging conditions resulting from the effects of COVID-19, a demand has emerged for...

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Patient- and Family-Centered Care is an accepted quality standard for adult and pediatric care, but its principles have not been widely adopted as drivers of...