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Supporting States to Improve Equitable Systems of Care for Children and Youth with Special Health Care Needs

Organization: National Academy for State Health Policy

Primary Contact: Karen VanLandeghem

Grant Amount: $190,259 for 18 months

Date Awarded:

Purpose

Many states are eager to address health care inequities in their programs serving CYSHCN. To promote this work the foundation has over the past decade supported creation and dissemination of the National Standards for Systems Serving Children and Youth with Special Health Care Needs (CYSHCN), which have been adopted into the Medicaid and Title V programs of 45 states. The foundation also has funded National Care Coordination Standards.

This project will include a 50-state scan of states’ approaches to addressing health equity in systems improvements for CYSHCN, and an analysis of additional opportunities for progress. The findings will lay the groundwork for future equity work using the Standards as a framework. The project also will produce updated tools and information to support states in implementing both sets of Standards and measuring their impact.

Resources From This Grant

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screenshot of infographic about CYSHCN in the US

State Policy Considerations to Support Equitable Systems of Care for Children and Youth with Special Health Care Needs

Issue Briefs

Drawn from a scan of all 50 U.S. states, this brief published by the National Academy for State Health Policy highlights strategies designed to address inequities in accessing pediatric specialty care and support equitable systems of care for CYSHCN.

State Policy Considerations to Support Equitable Systems of Care for Children and Youth with Special Health Care Needs

Drawn from a scan of all 50 U.S. states, this brief published by the National Academy for State Health Policy highlights strategies designed to address inequities in accessing pediatric specialty care and support equitable systems of care for CYSHCN.

Other Grants to the Same Organization

Supporting State Innovations for Equitable Systems of Care for CYSHCN

Many states are just beginning the work of creating equitable systems of care for CYSHCN, often in challenging political climates. In this grant, NASHP will host roundtable events and a national summit to foster cross-state sharing of successful strategies and provide states with support for adapting and implementing strategies. 

Advancing National Standards for Children and Youth with Special Health Care Needs

In spite of widespread recognition of the importance and benefits of care coordination, many states report challenges around implementing care coordination that fully and effectively...

National Care Coordination Standards for Children and Youth with Special Health Care Needs

Currently there are no widely accepted national care coordination standards for children with complex conditions. A grant to the National Academy for State Health Policy...

National Standards for Improving Quality Systems of Care for Children and Youth with Special Health Care Needs, Phase V

In the past, the health care needs of children with chronic and complex conditions have been met variously in terms of access and quality, and...

National Consensus Framework for Improving Quality Systems of Care for Children with Special Health Care Needs, Phase IV

To assist states in using existing data and quality measures that are aligned with the national standards to improve systems of care. See...

Improving Systems of Care for Children with Medical Complexity through Medicaid Quality Measurement Initiatives

To identify leading Medicaid quality incentive strategies and models, identify gaps in quality measurement and approaches, and outline strategies and recommendations to strengthen quality improvement...

How State Medicaid Managed Care Programs Are Addressing the Unique Needs of Children with Chronic and Complex Health Conditions

Several states already have transferred children with special health care needs into Medicaid managed care systems. NASHP researchers will identify best practices and commonly encountered...

Identifying and Assessing CSHCN: Lessons for States Transitioning to Medicaid Managed Care

To describe the federal requirements of states and managed care organization to identify and service individuals with additional health care needs.

Strengthening Medicaid and CHIP Programs to Serve CSHCN

To disseminate the Foundation’s national consensus standards for systems of care for CSHCN to state leaders of Medicaid and Child Health Insurance Programs for children,...