An immunodeficiency diagnosis can feel isolating and scary, especially for children. Jordan and Alex, brothers who both have Common Variable Immunodeficiency that requires monthly infusions…
After being diagnosed with a rare mitochondrial disease, Trevor received care from Packard specialists in genetics, neurology, and gastroenterology. In 2010, Trevor spent more than…
Luca arrived at our hospital in an emergency transport helicopter. At just 18 months old, he was in acute liver failure, and his life depended…
Lili is a natural-born performer. She loves the stage, and her parents and younger brother and sister are always ready to give her a standing…
“They are such happy children who love a good adventure,” says Lee, dad to 7-year-old Austin and 5-year-old Olivia. “They’re also pranksters. Who knew 5-year-olds…
Patria Eustaquio, RN, Patient Care Manager for the Children’s Heart Center’s step-down unit, 3 West/PCU 374, knows exactly what parents are feeling as their child…
Kai’s parents describe him as their “big rugby fighter,” after the rugby players they watched while living in Ireland. And they’re right—Kai is definitely a…
Nick received devastating news on his 13th birthday: He had acute lymphoblastic leukemia. His world came to a screeching halt. “We were overwhelmed with information,”…
“Seeing our baby hooked up to so many machines and monitors was devastating—and awe-inspiring,” mom Kira recalls of Hayden’s first open-heart surgery at just 9…
Just a few years ago, Ari and Aviv had to wait in the airport terminal while their mom, Sharon, stepped on the plane with the…
