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State Health Policy Center for Children with Chronic and Complex Needs

Organization: National Academy for State Health Policy

Primary Contact: Karen VanLandeghem, MPH

Grant Amount: $565,966 for 18 months

Date Awarded:

Purpose

State programs that provide vital support and services to children and youth with special health care needs (CYSHCN) are facing steep federal budget cuts. CYSHCN and their families depend on these programs, as nearly half of CYSHCN are enrolled in Medicaid or the Children’s Health Insurance Program (CHIP), and more than half are served by state Title V CYSHCN programs. To maintain and strengthen access to high-quality care for CYSHCN during this critical time, state health officials need focused support.  

The National Academy for State Health Policy (NASHP) will support states in identifying strategies and policy solutions in an evolving policy landscape and establish a State Health Policy Center. The Center will focus on three priority areas: 1) improving access to care; 2) advancing high quality health care delivery models; and 3) supporting public financing of programs, services, and supports for CYSHCN. A key activity of the grant is engaging and guiding 25 states in leading cross-sector policy and programmatic strategies, using a nonpartisan and inclusive approach.  

Other Grants to the Same Organization

Supporting State Innovations for Equitable Systems of Care for CYSHCN

Many states are just beginning the work of creating equitable systems of care for CYSHCN, often in challenging political climates. In this grant, NASHP will host roundtable events and a national summit to foster cross-state sharing of successful strategies and provide states with support for adapting and implementing strategies. 

Supporting States to Improve Equitable Systems of Care for Children and Youth with Special Health Care Needs

Many states are eager to address health care inequities in their programs serving CYSHCN. To promote this work the foundation has over the past decade...

Advancing National Standards for Children and Youth with Special Health Care Needs

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Currently there are no widely accepted national care coordination standards for children with complex conditions. A grant to the National Academy for State Health Policy...

National Standards for Improving Quality Systems of Care for Children and Youth with Special Health Care Needs, Phase V

In the past, the health care needs of children with chronic and complex conditions have been met variously in terms of access and quality, and...

National Consensus Framework for Improving Quality Systems of Care for Children with Special Health Care Needs, Phase IV

To assist states in using existing data and quality measures that are aligned with the national standards to improve systems of care. See...

Improving Systems of Care for Children with Medical Complexity through Medicaid Quality Measurement Initiatives

To identify leading Medicaid quality incentive strategies and models, identify gaps in quality measurement and approaches, and outline strategies and recommendations to strengthen quality improvement...

How State Medicaid Managed Care Programs Are Addressing the Unique Needs of Children with Chronic and Complex Health Conditions

Several states already have transferred children with special health care needs into Medicaid managed care systems. NASHP researchers will identify best practices and commonly encountered...

Identifying and Assessing CSHCN: Lessons for States Transitioning to Medicaid Managed Care

To describe the federal requirements of states and managed care organization to identify and service individuals with additional health care needs.

Strengthening Medicaid and CHIP Programs to Serve CSHCN

To disseminate the Foundation’s national consensus standards for systems of care for CSHCN to state leaders of Medicaid and Child Health Insurance Programs for children,...